Saturday, November 20, 2010

I AM STILL HERE!! - Saturday, November 20, 2010

I am still here!! I do not like to post and/or remember my major "pot holes" in my road of my life. However, I have been in a complete state of some thing. I just do not even have the appropriate word even!!

I can not even estimate the number of starts and stops I have done on this Blog!! I simply can not get past the picture and name, "Deborah, Max and Miprezious Dee Dee. This day only signifies to me that 104 days ago I placed Max in the hospital, 90 days ago I placed Max in the nursing home a.k.a. "hellhole" and finally 77 days ago our most beloved Miprezious Dee Dee II passed!!

I AM ALONE with my stitching!! Some days it comforts me, but the majority of these days I have just been too physically and emotionally exhausted to care about any thing, but climbing into my bed and try to make it all go away!! I wake early each morning to prepare to go to the nursing home, I spend the majority of each waking hour at nursing home and I try to "decompress" each night after coming home from the things I saw and/or heard at the nuring home. Max has unfortunately advanced to "Stage Five" End Stage Renal Disease. His dialysis sessions are becoming worse each day!! I am REQUIRED to ride the municipal transit handicap van to dialysis with Max, stay the entire four hours of the actual dialysis process and then ride back to the nursing home with Max. These sessions have become excruciating for me as I have to be up and on my legs for about two to two and one-half hours each session to restrain Max from getting out of his treatment chair!! Dialysis days "used" to be my only respite time from this ordeal and now I do not even get those days. I truly have never been so exhausted both physically and mentally!!

I have dozens of quite substantial finishes to post and show since the last time I did do this. I am going to truly try to get back into my posting and Blogging soon. I sit and wonder if I just need to change the picture and the name to get on with things. But, is a different picture and name going to change the fact Miprezious is truly gone and Max is also gone in too many ways!!

I am attempting to change many things and get re-organized here as I have yet another major "pot hole" to get over. Some where and some time, I have injured my self to the point it surely is going to take some pretty substantial surgery to repair. And, this surgery will be on my right shoulder. I have taught, and re-taught, and re-taught, and.............
my self to stitch through all kinds of handicaps. I truly believe I could get through any thing if I can simply just stitch through it. I am not sure at all if I have any chance of stitching through this one although!! I am not able to read with my short term memory problems, television only keeps my attention for very short time spans and quite frankly I do not know what I will do to get through this recuperation time!! It is also looking like very likely I will also be a resident of the same nursing home my hubby is in during this recuperation and rehabilitation time.

I had the opportunity today to re-connect with an old acquaintance who has been at the nursing home. She was ironically preparing to go back to her own home after the same surgical procedure I am likely to have done. She had the great misfortune of getting a horrific infection of her incision that turned out to be MRSA infected also. She has been in the hospital a month and the nursing home six weeks!! She still left with her arm in a sling with a gawd awful machine that made some nasty "sucking" sounds attached to her. She explained to me that this apparatus was a machine to "suck" the infection from her incision continually!! How horrific and such a horrible thing for any one to experience!! She also gave me some advice and it was that even as horrific as my pain (on full morphine) is presently it is not bad enough to finally give in and agree to the surgery to fix it!! This was a horrific thing to hear!!

I am presently working on re-organizing my main room of my "Stitching Sanctuary" once again!! And, as I find my finishes to display I AM going to get them pictured and posted. I may surprise my self with all I will probably find!!

Now, just to find a new picture and new title for this Blog!!

Love and Hugs To All!!

When you are sending out your Christmas greetings, I would so very much appreciate as many as possible people to send greetings to Max.
He loves to receive mail and cards!! His room mate's family have become very cherished friends to us. These gals are very good at daily placing all his cards on to the wall. I think Christmas cards will be the most pretty of all to display over as much of Max's walls as possible!! I thank each and every one of you in advance!!
Max's Alzheimer's disease and dementias have advanced so drastically that he is equivalent to a child upon receiving mail!!

Max's Address Is:
Lynn (Max) Markham
Eagle Point Care and Rehabilitation Center
801-28th Avenue North
Clinton, Iowa 52732

Saturday, July 10, 2010

Tragic Fourth of July - Saturday, July 10, 2010

I also wanted to add to my posting regarding the tragedy on the Fourth of July in this area.

One of the horses involved in this tragedy was injured and had to subsequently be put down!! This is so very sad for so many!! Rumor mill has it they did an autopsy of this horse and it was found to have had
a bee sting in one of it's ears. Thus, the eye witness accounts of the horses rubbing against each other with their ears and the horse bridle becoming loose and dropping off. I am not a horse person, but that would appear to make sense - if there is such a thing in such a tragedy!!

I still offer prayers for the injured and sympathy for the family of the lady who was killed.

Love and Hugs!!

Three Days, Two Nights............!! - Saturday, July 10, 2010

YES, today is number 41, I think, and counting!! I am not sure if these pictures ever got posted on my Blog as I am not good at dealing with UNPLEASANT MEMORIES!! I could not even get this picture rotated properly!!

Please reinforce with me everyone, "Three Days, Two Nights................
Any One Can Get Through These!!

Last year, Max surprised me with a birthday gift of a week's vacation in this one room shack!! For MY own birthday no less!! It was nothing short of the "Griswold's Vacation" and more like the "Markham Vacation To Hell"!! And, Max did not want to come home!! He reminded me, but yet he does not know it is a new day and time to change his underwear, that Eunice and I promised to take him back to this one room shack this year for a much shorter vacation perhaps even a few times during this summer!! And, the poor guy is constantly pacing, looking out the window, to see if Eunice might have come home from Chicago all last weekend and in to this week, so he might have an opportunity to go fishing!! I thought this is just a passing thought and he will give it up when he gets tired of it!! Nope, not this time!!

I kissed my garage floor upon re-entering my own home last June and I vowed "NEVER, NEVER, EVER AGAIN"!! Well, after hearing Max whine all week, I had a moment of temporary insanity upon his asking me just to "check and see if we might be able to get the rental cabin for even a day or two" yesterday and took a cancellation that had just come in!! OMG!! I am totally over the cuckoo's nest!!

I swear to God that every one gets their own favorite blankie and pillow, the clothes on their backs and munchies for three days and two nights!!
I will give in packing the baby gate only to save me from jumping up and down every time Mi decides she is on the lam again!!

Darn little Mi told Juanita she wanted to go out Wednesday as she arrived. Juanita did not know any better and let her out the gate just as I was arriving on the porch!! BRAKES EVERYONE!! Juanita and I began pursuit of her immediately while Max heard my screams and came out finally!! Mi had gotten down the length of our drive and to the curbing where the mail boxes are!! I thought my heart was coming out my chest!! All of a sudden, Max screams out, "get your black a$$ over here"!! Sort of, kind of, wrong pick of words Max!! My beloved Juanita is of the black race and so are several of our neighbors, many which are new and do not know us and now probably do not care to know us!!
No more than got Mi back onto the porch and she went straight for my potted plants and stuck her little hand and nose in them and threw a bit of dirt from each!! Yesterday, Mi again escaped from front door onto porch as church lady was taking Max to dialysis!! She did not get out the main gate, however, she went down the first stage of steps to upper courtyard and decided she would park her self there until her "Daddy" returned!! Do not think so Mi!! She has simply been full of the devil the past few days in the things she has found to amuse her self. I guess she is bored with the three huge baskets full of toys!! I am not hauling all those things down to the "shack" for three days!!

And, wait till I get some pictures taken of "every thing" I have stitched on this week. I am not sure, right off top of my mind, if there are seven, or if there are more!! I did start a surprise kit I found among all the other hundreds in these two stitching rooms full one day this week. It turned out to be a 40-COUNT Lizzie Kate!! What am I doing with a 40-Count any thing!!!!

I woke today thinking it was one horrendous nightmare until I saw Max's fishing equipment stacked along with his pillow and a few other things of his in the corner of my kitchen!! Do not think of leaving any thing until last few days - nope!! We will be packing, unpacking and re-packing for the next 41 days!! I have been here one time too many!! I just have to smile and think that the dialysis nurses will finally see Max at his finest as he will be as a caged animal wanting to escape their clutches that final day of dialysis on August 20!! Hopefully, I can sort of pack and re-pack while he is gone that day!! However, I will have to have every thing ready to go that day and most likely pick him up my self that particular day to begin our drive out to the river and get us set up by sunset!!

Yes, I have had a week comprised of several "moments of temporary insanities"!! Good Lord, what have I done??!!

Love and Hugs!!

This is me after a morning of some great catches!! Enlarge, there are some beauties of fish on there!! And, you should have seen the one that got away!!

See, I told you, I had some real fishies!!

This is our total bed on the right hand side of this one room cabin shack!! Right where our heads will be is the wall hiding the flushing toilet. Thank God for walls that hold flushing toilets in places like this!!
Mi recognizes little else, so you usually find her sitting right on top of the bed!!

The bed is to the right of this picture. The flushing toilet and vanity sink is behind this small wall. Towards the back is our entire kitchen area complete with microwave, however, no cook top or oven. Below the microwave is the refrigerator/freezer!! To the right of all this is a small aluminum sink with running hot and cold water!! Only slight problem is I do not allow any water to be run in this place as it smells far worse than some kind of "sulfur" smelling some thing!! Do you see the spacious and lovely cupboard in the middle?
And, just to left is our spacious dining room!! One stop living bed, dining table, furnished kitchen and spacious bathroom with flushing toilet!! What more could a person wish for!!

This is a reverse view of what you just saw above!! This is lovely loft area!! You just need to be a billy goat to be able to climb up there. See that slightly slanted board with slant to the left!! That is a wooden rung ladder that you simply just tip toe up!! Yeah Right!! It is a beautiful area up there with a lovely window that over looks the river and is a beautiful view at night, especially during full moon time. There is a great plenty of lovely mattresses of your choice stacked up on the right hand side of the loft for your sleeping pleasure!! Yeah Right!!
If you look through the trees you just about can see the river view!! And, here sits my Chevrolet Van in front of our home away from home!!
Welcome to Markhams' Vacation in Hell!!

I am so happy this will make Max happy!! It will hopefully erase the horrific Monday, Wednesday and Friday from his weeks for awhile with giving him some thing to look forward to!! I hopefully can find a piece os stitching, that will be so hard, that can take a bit of roughing it with me and hope my days pass very, very quickly. I am just in great hope and will be praying for the best of weather so Max can simply fish, fish, fish to his heart content!! I just hope he does not want to bring his catch home with him!! Last year, I caught all the fish, but then Max had to bait my pole, help me put my pole out in to the water and bring my pole in with a fish on it and he barely got me in to the water when he had to get up again and tend to me!! Thus, this year I hope to just stitch to my heart content while he does his fishing thing!! I am already going through withdrawals from knowing I am not taking a floor lamp with me and thus I will just have to get along with out it evenings!! This could end up paiful!!
Love and Hugs!!

Wednesday, July 7, 2010

Fourth of July - Sunday, July 04, 2010

The above picture came from our local newspaper last evening!!
Unfortunately, it does not appear all too clear.
The Fourth of July turned absolutely horrific for this immediate and next town north of us area (about 20 miles).
As for locally, we have acres and acres of beautiful land edged completely with some hundred feet plus cliffs over looking the Mississippi River, preserved as Eagle Point Park on the very northern edge of our city. It is actually only about 20 city blocks from my home.
And, never a holiday passes, that some child will fall from these bluffs despite the warning signs and/or fences!! It leaves me to wonder where in the world are the parents and what were they thinking!! And, this Fourth of July was very much the same with a twelve year old boy falling some 80 feet down the bluffs. He ended up with some head and spine injuries, as well as some fractures.
These cliffs ultimately have several sets of operating railroad tracks at the bottom of them with the tracks running aside full length with the river. Most rescues have to be made from going miles to one end or the other via these railroad tracks and then after attempt the rescues!! After the person has been rescued and stabilized, it is a long several miles to where an ambulance can accept their patient. This particular rescue took the ambulance transporting the victim to a small neighborhood park that happened to have a baseball field among it about twelve blocks away to an awaiting helicopter which was able to fly the victim to the University of Iowa Hospitals. The local paramedics finally constructed a gurney of some kind with wheels that will attach to the railroad tracks and allow them to simply push it to the waiting ambulance!!
However, things turned very tragic for the town of Bellevue, Iowa about twenty miles north of us. They had their usual Fourth of July parade early Sunday morning. At the end of the parade were the usual horses, horses and carriages and various other horse related riders and things.
I was just sixty years old. All of my life, I have been scared to death of horses as my mother instilled this in me from the time I was a few months old. I was taken to my first parade, in all ten freezing degrees, for Mardi Gras about five months after I was born!! What was SHE thinking!!
My father was on the Police Department and many times he was in the planning of the parade line up. Each parade my mother wanted to know exactly when the horses were going to be put in, how many there were and how far away they were. At first sighting of the horses, my mother promptly grabbed my brother, sister and my self and we were immediately placed inside of our car!! We were always quite upset by this!! This was usually Santa's big premiere for the year, around these parts, and we always managed to completely miss him as he was always the very end of the parade!!
However, my mother hated horses in general, I think!! I always also wanted to see them!! NO WAY!!! Those animals could be "spoofed" and then stampede right through us and/or over us. All these years, right up to this present situation, I always thought how very, very stupid and it just would not happen!!
Well, you live long enough, unfortunately you see every thing!!
During this parade, the horses some how rubbed up against each other and a bridle fell off one and this spoofed them and they went straight forward on a speed run through the rest of the parade. The horses stomped and a carriage wheel ran over several children simply stooped over to snatch up the candy thrown from the moving parade vehicles.
(Thankfully, our town passed an ordinance that no candy could be thrown, but rather had to be passed out by accompanying walkers in parade.) Last count I heard was at least 24, mostly small children, had been seriously injured!! One adult, the driver's wife, was thrown out of carriage and on to a cement driveway from the runaway carriage and was killed!!
The man driving had seen his poor wife be thrown to the ground, but also had his daughter-in-law, 7-year old grandson and 5-year old granddaughter in the yet runaway carriage. The carriage finally crashed and overturned. The daughter-in-law was able to put her arms around her two children and hold them close to her. They escaped with many bumps and bruises only.
But, then that poor man driving. He desperately clung, for all he could, to the reins as tightly as he could. Witnesses say this man's shirt was in shreds as the horses continued on dragging him for over a six block distance over cement streets!! When rescuers reached this poor man he totally refused any type of medical attention and was only worried about his wife and other people injured!!
And, the poor horses were finally stopped in an intersection after colliding with another float!! They went down to the ground and dozens of bystanders immediately jumped on these poor animals to contain them!! I know these horses had to be stopped, however, they had to be even more scared upon dozens of people jumping on them!!
This was just simply one of the most horrific and strange accidents I have seen in some time!! My heart and prayers go out to all the people affected, especially the poor driver of the horses and carriage who lost his dearly beloved 60 year old wife!! How very, very tragic for all!!
Thus, I am posting this to simply say, "I guess my mother was not as crazy as we all thought her to be"!! It is truly some thing to consider when you are attending your next parade and to truly get your hands on those precious children of your own "just in case"!!
Love and Hugs!!

Saturday, July 3, 2010

Long Day - July 03, 2010

I had hoped for a bit larger of a picture, however, this is what I got!!
And, after all day, and until 10:00 p.m. this evening, this is all I got stitched!! Not really complaining, as I do thoroughly enjoy each, and every, little "x" I can accomplish. I did get almost entire "sugar" container finished and two pieces of the "lace". The lace is a bit hard as I have to make tiny "pulled eyelet" stitch in the center of each piece. Not quite used to these yet. However, from the amount shown on chart I should be a pro by the time I am finished.
I am truly looking forward to finishing this table topper and displaying it very proudly in my home!!
I had several questions regarding this chart and emailed the designer, Claudia Dutcher. Within a very short time, she responded and very kindly helped me over my questions. She also offered some very helpful suggestions to me for completing this project. Best of all she told me it was not absolutely necessary for me to "pull" any threads at all, if I did not wish!! YEAH!! This was added incentive for me to get this to completion now!!
My poor hubby, Max, spent his entire day pacing in anticipation of fishing!! He has had some very severe confusion in recent weeks. I simply could not get it explained well enough that there would be no fishing by us today!! He even was upset with our dear neighbor as he decided she had taken off fishing without us, while in reality she simply went in to Chicago for a few days!! Guess I am going to have to make sure some one takes him the first of the week, if not before - just not me this time!!
I had so much relaxation, once I got started, that I finally relaxed for first time in several weeks. Guess today worked so well that I will extend my "virtual stitch-in" through tomorrow also!!
Love and Hugs!!

FINALLY - Saturday, July 03, 2010

Hopefully, I finally am settled back into being centered on my stitching and my Blog. It has been sooooooo long!! I did not have a clue as to how long!!

I got up to I.L.C.S. Group having their "Virtual Stitch-In" today and decided good day to begin some thing new. I intend to incorporate a whole lot more and form a new rotation this week!!

Today, I started the Tea Time chart for a table topper by DUTCH TREAT. I choose a lavender afghan fabric to stitch this on. I am quite leery of how this is going to come out as each instruction step seems to get more unclear to me!! Been offered lots of help so I am intent on doing this.

However, in the midst of beginning to stitch finally, I have a whole five stitches, Max came in and told me I had to come out to my deck on my handicap ramp. Was not too keen on moving, however, I did as Max is a bit upset that he can not go fishing today and thought I better check on what he was up to!! When I got out there Max was standing pointing to a very favorite lily of mine which has taken to almost full bloom. Hopefully, I will be able to post a picture on here some where!!

Hope to post more later with real pictures of real progress on my table topper!!
Love and Hugs!!

Friday, April 16, 2010

And The Winner Is.......... April 15, 2010

And, the KUSTOM KRAFTS Chart Winner is:
Jennifer Black

Jennifer, please send me your address via private email please!!

Love and Hugs!!


Good Evening All!!

This is the total sum of months of digging and stacking to the ceiling and wall-to-wall of S T A S H!!

And, it is all going to be STASH TO GO!!

I have not begun to figure out how to list it and/or distribute it!! Any ideas? Wish I had better access to every one's Wish Lists!!

I only know I want it all GONE!!

I have dozens and dozens of pictures to post and things to tell, but I have not had a minute where I have felt up to it when I have had the time. Pretty much only had "down" time when I have not been feeling well the past several weeks!!

Debbie has truly been through almost every single inch of this home, including the entire lower level!! It is now "pretty much all up to me as it is almost all "my" stitchy things"!! Okie Dokie!! I have some moving and motating to get done!!

It is truly a tremendous, best of best, feeling to finally get caught up!!

These pictures are pretty much self explanatory!!

I have another update regarding my KUSTOM KRAFTS giveaway!!

Love and Hugs!!

Magazines!! Magazines!! Magazines!!

Magazines!! Magazines!! Magazines!!

Charts!! Charts!! Charts!! Charts!!
Yes, even that purse is to be stitched!!

Charts!! Charts!! Charts!! Charts!!

Sunday, March 21, 2010

PRACTICE, PRACTICE = PICTURES - Sunday, March 21, 2010

I put my mind to getting pictures taken and posted!! And, I have made some progress!!
I went out and bought a camera for ME and I have "squirreled" the instructions and CD instructions away for ME!! Selfish, no just safe as I do not want this camera to be closed by DUCT TAPE!!

So, here is my progress!! Not all that interesting, but I was so anxious to prove to my self that I could do this!!

Above is the January, February and March PINE GLEN Monthly series of "Tie Up" Pillows. I am going to make a nice basket out of these along with the monthly "Tuck" Pillows also!! As is, simply is too much temptation for Miprezious to grab one, or more, and declare "oh, a pillow and just my size"!!

Above is my fireplace wall. Recently removed television table to make more room and thus television got placed above fireplace. To the left is my oxygen modulator. Not real attractive, but a bit necessary!! Much to loud to place it elsewhere. To the right is the main hallway with master bedroom at first right and "Stitching Sanctuary" to second left with the bathroom straight ahead. To those familiar with my original

Above shows the best "cloud" wall. To the right, is Max's "rat nest" that he spends about 20 hours per day in!! And, the red jar is "TREATS" and that is Miprezious' private stock. In front of the coffee table is Miprezious' own nest and she demands comfort!! My furniture is Hoveround "friendly" and not really deco attractive!! It was hard, but I am learning to live with things!!

And, you can see the six "store fronts" that I stitched many, many years ago!! They took a period of over FIFTEEN years!! They are definitely my pride and joy!!

Oh, the walls are the newly "faux" painted "clouds" by faux paint designer. And this picture shows the sun shining in on the brand new carpet showing that it is actually several shades of royal navy blue.
And, this completes the tour and the first camera practice!!
Love and Hugs!!

Friday, March 19, 2010

It is DISCO Night - Friday, March 19, 2010

What do you wear for the 70's DISCO? Well, we had a Nurse, Physical Therapist, Max's Personal Caregiver, Eunice and a variety of other friends surveyed and got no two answers that were the same!! Thus, we went just as we were!! This was the event that Max could have successfully worn my dress slacks and actually got away with it, rather than the dismal center of attention he was at the church's Annual Meeting!!

Yes, tonight was DISCO NIGHT at our church provided by our active Social Committee!! I never saw such a variety of disco lights, black lights and lava lamps!! There was a real DJ and overall this was quite well attended!! We actually enjoyed our selves by just getting out!!

I am about to embark on a brand new "step" for me!! "I" bought a new digital camera today!! All by my self, "I" decided on a camera to buy!!
Well, to be perfectly honest, I can not say this!! Kohl's had a "POLAROID" digital camera on sale in their newspaper advertisement today and tomorrow!! I got lots of "Kohl's Kash" when I purchased my new shower drapes and accessories a few weeks ago!! Thus, this $105.99 camera cost me $21.19!! It has anti-shake, zoom, USB Cord to connect to computer or television (that will be the day I have learned every thing any one ever wanted to know-NEVER), no red eye, etc., etc., you know!!
I have already learned how to put in the date and time!! This is huge moment for me!!

There is a CD that you play that is supposed to teach you every thing you need to know to take pictures and put them online for people to view!! We will certainly see!! I am going to give it my very best as I truly want to get caught up on all my pictures and make them the best pictures I can do!!

Thus, I am off to try and figure out where this round thing goes!!

Love and Hugs!!

Saturday, March 13, 2010

Can you Say DISCRIMINATION?!! - Saturday, March 13, 2010

I intend to make this as to the point as possible as I am still absolutely so lividly "pissed", yes you read it "pissed", that I can barely get my thoughts organized!!

After sitting by and watching helplessly, I finally demanded a "Care Conference" regarding my hubby, Max, about a month ago!! Well, THE day arrived on Wednesday of this past week!!

It is a LONG story, but most know the horrific Hell that we have been living in since Max was first diagnosed August 15, 2005!! The only thing I can say is thank God our community's medical people were wrong again and Max has far outlived the six months he was given!!

We have been put through a daily living Hell and been through all the hoops and government red tape you could ever imagine!!

I was not getting any where at this Care Conference, however, most points brought up were completely wrong or had no validity whatsoever and thankfully I had asked Eunice to be with us and to feel free to speak up whenever the urge hit her!! Eunice finally had her "fill" of the BS we were dealing with and asked, then somewhat demanded, to know just where Max was on the National Donor Transplant List and just what the Iowa City, Iowa VA Hospital was doing for him!!


Eunice "pressed" a lady psychiatrist that Max has had to see as part of "the process" monthly forever it seems!! Eunice demanded to know just where Max was in the miles of red tape we have conquered, or so we thought!! After much hemming and hawing, this woman finally said, "Well, quite honestly, Iowa City is simply not considering Max for either the kidney he so urgently needs or the liver"!!

Why after these years of jumping through hoops and being at Iowa City VA's beckon call!! Because I AM DISABLED AND IN A WHEELCHAIR!! Yes, Max is to suffer because I am disabled!!

Well who was going to oversee Max's care after the transplant surgery?
Who was going to the pharmacy and obtain his necessary prescription medications and who was going to dispense them daily to him. Who was going to see that he ate properly, got adequate exercise and rest, and was cared for at times when he could not care for him self???!!!
Well, the simple answer to these questions is the same damn person who has been doing it for the last thirty plus years!!!
ME!! ME!! ME!! ME!! ME!! ME!! ME!! ME!! ME!! ME!! ME!! and ME!!

Can any one direct me to the best discrimination law firm in the entire United States? Can any one write their Senators and Representatives in Max and my behalf?

As you may easily see, I am yet beyond discussing this situation without the worst anger I have ever had emerging from every fiber of me!! And, as an added bonus the VA is sending in yet another siege of "Visiting Nurses", "Social Workers" and "Physical Therapists"!! I got to the point of threatening the last "Nurse" with my friend, "Betsy Winchester", and I will gladly do it again!! I can still remember my own Physical Therapist tightening his grip on me and whispering, "they will cuff you and take you to jail"!! As I told him then, I do not care as it will give me publicity to this atrocity they refer to as Iowa VA system!! Well, I truly would never do harm to any other individual as has been done to Max and my self!!

For the record, I have climbed ladders and I have crawled down an entire flight of stairs on my belly to get what I needed done and I will do what ever it takes to keep my little family of three's best welfare and safety as my only purpose in this life together!! I am dealing with the loss of use of my legs, not my brain and fortitude to take care of this family. I will do what ever is needed to take care of the three of us!! I have set my self back many times in getting things done that needed to be when I had no other options!! I have taught my self how to get things done, albeit perhaps quite "unconventionally", but all the while done!! And, thus far, I have been fortunate to hire extra outside help when the need has presented it self!! We have never went without any thing we needed or for that matter wanted!!

I can not believe that there is some one who does not have any idea of who I am or what I am made of has the power to possess a rubber stamp that denies my husband the right to his life!!

PRAY you never need to rely on any Veteran's rights and benefits in Iowa City, Iowa!!

Wednesday, March 3, 2010

GOOD GRIEF - Wednesday, March 03, 2010

I do not ask for too much!! Why can I not just curl up in my stitching nest and just stitch any more?!!

I have been fighting my new home renovations for weeks now and am ever so close to finishing them. I am HAPPY, HAPPY, HAPPY, with each, and every, one of them - well almost!! I do not like, no I honestly HATE draperies!!

I worked till I was ready to drop yesterday trying to finish up every thing I had here available for me to do!! I can not make up my mind on the bathroom curtains, shower curtains, rugs, etc. I am hedging on "toasted almond", but I do not plan on ever redoing any thing ever again!! Thus, I want to be absolutely sure positively!!

I had to hang the living room draperies yesterday. Kathy K. had called me for our afternoon chat and had very much tried to discourage me from trying this. I thought with my directing Max could do the actions!!
WRONG!! I attempted to make a few climbs, however, my legs screamed in worst pain I have had in awhile and reminded me do not do this stupid!! Thus, I thought if I got all the drapery hooks placed that Max could just put them in the traverse rod holes. I have a set of pinch pleated sheers and "silks supremes" to hook. I got most of sheer draperies done and was thinking we surely could do this job easily!! I then promptly run a drapery hook in the middle of my middle finger on my left hand to have it exit the top of my finger!! OUCH!! OUCH!! OUCH!! Not quite, I had some of the worst words I could ever imagine flow out profusely from me along with a whole lot of blood I was trying to keep off the draperies!! So much for stitching!!

This morning Miprezious had an appointment with a new Groomer. I had instructed Max to stay inside the home of the Groomer today so as Mi could get acquainted with the Groomer and we could evaluate if they got along well or not. I will not leave Mi any where she shows any apprehension at all!! Max can NOT drive any longer alone and honestly it is down right scary to ride with him!! I will gladly take world's worst roller coaster over ride with Max any where any more!! I gathered up my "Windows 7" instruction books and Max loaded them in the van. I planned on simply staying in the van and reading. As usual, Max did not pay any attention to me and promptly came outside after just dropping Mi and running!! I was very irate, but agreed to go to breakfast and come back for her!!

Max went in to pick her up and simply did not return. I had the worst feeling in pit of my stomach that I would be seeing the Paramedics pull up to this home as no one knew I was sitting outside in the van when he did not return. Soon, the Groomer and her assistant came out to the van with Mi and Max was sheeply following them. They promptly told me that Max had fallen down a goodly number of stairs as far as they could tell as they did not witness the full fall, but rather just Max rolling down the steps and onto the floor. The Groomer was just overwrought with fear Max had been severely hurt. Max simply kept saying all was okay until the Groomer and her assistant disappeared and then the complaining began and went on and on!! Evidently, Max did get hurt quite badly, but as of this evening, he still is in complain state and refuses to see a doctor!! Wait till about midnight when every thing always worsens for any one with any thing it seems!!

Thus, I am back to reading my "Windows 7" books tonight and simply staring at my stitching!! I am contemplating on how I can safely touch my fabric though and hope to get back to stitching very soon!! I have gotten through much worse stitching dilemas and will surely again.

I did call my "faux designer" who did the painting of my new rooms and she said she would be right over to assist me with my draperies this afternoon. After four hours she "Googled" on suggestions to handle traverse rods!! Followed suggestions step by step and she now has the drapery traverse rods in pieces across the living room. She went home about supper time with promise of returning first thing tomorrow morning to get this job done one way or another!! I can only hope!!

GOOD GRIEF, I am so glad this day is gearing down!! Tomorrow is a fresh and new day that I will rejoice in seeing come!!

Love and Hugs!!

Friday, February 19, 2010


I most gladly wrote Debbie her first, of hopefully very many, paycheck this afternoon. It is most assuredly going to cost me a few pieces of stash per week and an overall budget tightening!!

However, she has earned every single penny she got!! I have finally begun to HOPE again for the first time in the last several years!! My house is once again becoming my home. Debbie seems to have the same "mind set" as my self!! She can recognize a problem and either immediately remedies it or disposes of it for good - while only mentioning it to me to be sure I agreed.

Unless you have had to depend on some one else for most every thing you can not understand how great it is to have finally found some one who can think for them self while considering how I would think about the same. For the last few years, I have had to experience such things as "What do you want me to do today?" And, while I would frustratingly usually reply, "clean the house". To immediately hear, "All the house. You mean the bathroom also." And, I would have to indicate yes I meant the entire house and either changing the bed linens or doing the general laundry. I would have to stay alert to every thing going on, or in many cases "NOT" going on the entire eight hours our usual Caregiver was here!!

From Debbie's first day, it was minutes after me telling her she was hired "is it okay to start changing the bed linens"!! While my reaction was apprehension as I could not show her the lower level of our home and there was no one available at the time who could. Debbie's answer, "I can find a washing machine knowing there is one"!!

Max and I had to go to some banking that required our personal attention this morning first thing. Debbie teaches two classes, very early morning at YWCA each morning. We decided we would venture out alone as our bank is only two blocks from our home. We arrived home just after Debbie had arrived. She came to the van to help transfer me and Miprezious went crazy to see her. I was uncertain if Mi would even remember Debbie as she was so ill the first part of this week. Mi is always leashed when ever she is out of entry of our home. Thus, she immediately went to Debbie and since it takes so long for me to transfer, Debbie took her for a stroll down our driveway. Miprezious was escatic to be able to be outside even for those few minutes!!

All I can say, is Debbie got into "That Room" today and spent a majority of her time there. I had a "nasty" night last night and when this happens nothing will do until I get at least a few hours nap. Thus, as soon as we got home this morning I went back to bed!! I asked Debbie to get me up by noon as I do not want my days and nights mixed up again. When she did I was amazed at the many boxes she had gotten, and began to sort, "That Room" into some managable tasks. I had began downsizing all my "stash" late last year. I had began looking through hundreds of books and magazines for things people had asked from me. I have post-it notes every where!! My new bathroom "vinyl", or whatever it is called (never have had any thing, but carpet my entire life in all bath rooms), entrance foyer new flooring and living room carpet are going to be installed next Wednesday. Thus, I think it will be a week some what in "limbo", however, we will be pretty much forced to spend the entire time in my "Stitching Sanctuary"and I intend to make some tremendous progress there. I am declaring war on my stash downsizing to begin on or before March 01 and I do not intend to let any thing get in my way until it is fully completed this time around. Knowing Debbie is truly backing me up on any thing I want done I have the greatest of hopes this will be IT!!

I have a stash downsizing plan and I am going to get it done!! My UFOs are becoming history!! My WIPs are going to be organized and placed where I can reach them. I should begin a contest of guessing how many WIPs I will be putting in a new album to keep my self accountable to doing some thing to each one. This may be the first full month rotation ever known!!

Debbie has part of her home that is an apartment. She rents currently to an 82-year old lady who does mostly cross stitch. She visits her daily and does now some what understand cross stitch. She has also chatted with me about teaching her to cross stitch on days she is not working for us. I have wanted some one to cross stitch with locally for years!! This would be fantastic!! Many months ago, Granny Lou, who is 85-years old and cross stitches daily, Eunice and a few others I can not recall used to meet each Friday afternoon and cross stitch together here. Eunice only did this under protest and has not kept up with her project!! It would be fantastic to get some thing like this restarted also.

Thus, I have always gave my Blog reader's first chance at all the "Stash To Go". I intend to do this again. Hopefully, soon I will start listing what there is that must go!! Kathy K. has taught me to "copy and paste" quite well so hopefully I can picture most of the items. That camera and I need some serious practice sessions and lots of tutoring, however, I am also going to make this a priority. No one is going to believe all the things I have managed to finish since Halloween. I have had few finishes for the entire past few years total, but I have finally got some speed acquired.

I have been stitching on the new Just Another Button Company Months of this Year January Teaspoon most of this week. I have a very nice finish to show on it!! I also just about finished a new bookmark!! An incredible week for me!!

Thus, Max and I are daring to go out this evening!! This is not been done in a very long time!! Albeit, we are just going a few blocks to our church "Game Night" we ARE getting out!!

Things are beginning to go my way and I am becoming a very happy camper again!!

Love and Hugs!!


Tuesday, February 16, 2010

WHAT A DAY!!! Tuesday, February 16, 2010

Hello To All!!

Yes, I am still here!! No, I have not quite mastered the camera with this new computer yet!! But, I am making progress. I have things set aside that go way back to Halloween!!

I am hoping and praying that today is the first day of my last interviewing and instructing potential Caregivers.

I hired a Canine Nutritionist for Miprezious the week of our past Thanksgiving. Her name is Maggie and she is the BEST!! When I first met Maggie I was so distraught over the horrific news we had just received about our beloved Miprezious that I completely overlooked the fact she was obviously pregnant!! She had her fifth lovely little boy a few weeks ago. It turned out to a very complicated and serious C-section delivery for her and her darling little Frankie. In the midst of the worst ice storm I have ever seen Maggie and baby Frankie were rushed by ambulance to the Iowa University Hospital, about 90 miles west of us.

Maggie and her husband, John, are two of the most terrific people we have ever met!! They have a lovely family of five boys. Maggie and Frankie were hospitalized for about two weeks. We got to meet the new little man last Friday. He is absolutely a real sweetie!! He still needs a bit of oxygen and various monitoring, however, Maggie has him in her shop all bundled in a cute little bassinet and he did not seem to mind our peeking at him at all.

Maggie and John have a very cute and very at home feeling shop. However, with Max's continued problems we rarely go out any more if he has to drive. Thus, Maggie recognized our problems very early on our meeting her and quite soon Maggie volunteered to bring Miprezious' meals and treats to our home!! It turns out they live about one block from us and could actually be called "neighbors". As with all our neighbors they are most helpful and caring to us!!

Max and I were absolutely astonished when we received a telephone call early the morning following Frankie's birth!! Maggie had left instructions with a relative of hers to contact us and make sure Miprezious had her meals and treats!! We were in utter disbelief that Maggie cared so much to check on us!!

Maggie and John make all Miprezious' meals fresh from real foods. John seems to be the baker and makes very yummy cookies and biscuits. Miprezious seems to favor the ones that have real cranberries in them. We generally need to replenish her meals and treats every seven to ten days. Maggie has taken the time to personally talk with Miprezious' doctor and has done much research on her kidney failure.
Very wonderful family and are truly TOP of our list of favorites.

About ten days after Frankie was born I got to chat with Maggie on the telephone while they were still at the hospital. Maggie was having John bring Miprezious refills of her meals and treats. Maggie also told me that a friend of theirs was just starting a Caretaker business. Maggie's recommendation was gold to me. I got very busy the following days my self and I had just not gotten to calling this lady to chat about coming to work for us. I had it on my mind, but just could not make the decision to restart a new Caregiver again!! About this same time, I received a telephone call from Debbie. Her name alone just made her have to be good!! Debbie was ready, willing and able, but I was the problem of simply making the decision to start over again with yet some one else new. Max and Miprezious both especially are requiring more care recently and they are also the hardest to get to make changes or remake our schedules anew again!!

Wanda had come back to help out as much as she could. However, with her working full-time every day and her membership in a great number of organizations made her time with us very limited. Eunice also had been discussing some one she recently met who was interested in working for us. I also very much value and appreciate Eunice's choices and she still does way too much for us her self!! All things considered, I was just unable to make a decision of what to do. I am right in the middle of our Spring cleaning and redecorating!! Each day I am greeted with a very small area, of the almost 200" front picture window, having draperies in place while the larger remaining area covered with Christmas wrapping paper!! A few days ago, Debbie had called me again to check if I had made a decision on hiring her. I suddenly felt like I was "drowning" with too much left undone with the new flooring installation getting closer each day, laundry piles beginning to accumulate, dust bunnies starting to retake the fire place mantle, bathroom tiles to be waxed along with the front window looking like hillbillies had taken over, I finally decided ENOUGH!! I told Debbie I would be most happy if she could begin as soon as possible with us!!

Debbie arrived at 9:00 a.m. this morning!! She is a very pleasant lady who needs little instructing!! Within minutes of her arriving, she asked could she begin changing the linens on our beds!! I told her I had just bought all new linens in my attempt to "freshen" each room in my home. Debbie then asked if I was ready to use the new linens and I told her I assuredly was more than ready. Debbie pointed out that with my very fair skin she guessed that washing the new bed linens would be a good idea. I told her I would love to have them washed, however, I did not have any one available to give her a tour of our lower level and washer and dryer, etc. Debbie promptly said she was capable of finding a washer and dryer and that it would be no problem. She then began to replace the bedskirts. With "the beds" you must get a very large Phillips screw driver and remove several screws and brackets. I had no idea of this!! Debbie promptly located the tools she needed to put the new bed- skirts on, BUT she additionally asked if I would mind if she starched and ironed the new bedskirts as they came out of their zippered bags quite wrinkled!! She also asked if I would mind her dusting and rehanging the canopy. Now, I have NEVER had a Caregiver who did any thing like this "procedure" even upon my direct asking them to!! I was totally astonished that she pointed out these things needed to be done before she could complete changing the beds!! Additionally, this lady gently reminded me I had been up on my legs much longer than she thought I should be and suggested I just sit down and stitch!! I truly thought I was having a "nasty" day with my morphine and that this truly could not be real and actually happening in my home!!

Soon, Max's bus arrived and was waiting for me to appear in the doorway before they begin to help Max get off the bus and in to the house. Debbie immediately asked if Max would be upset if a "stranger" went out to bring him in the house!! It is freezing Iowa!! We have a long driveway and Max now moves very slowly!! Have I gotten a crazy person working for us!!

For the first time in years, I was seeing my house become my beautiful home again. AND, I was fast thinking, I am just giving "yes" and "no" answers to questions and was not having to tell Debbie every move needed to be done.

Lunch time came. Debbie asked what did we want for lunch!! Now, I really thought I was still sleeping and only dreaming or my meds were really kicking my rear today!! We usually make breakfast and lunch, one meal, on dialysis days. Max and I simply are not used to meals prepared for us since before we had the doctor ordered "meals on wheels" delivered each day!! I always have fresh bran muffin batter in my refrigerator so that they can be made at any time. My mother had just requested that I make her a new batch of batter so I had made another for us also. Soon we had the nicest lunch of fresh hot bran muffins and fresh fruit that Debbie had peeled and sliced!! I was then sure I had to have still been fast asleep and in dream trance!!

After lunch, I noticed the large bins of laundry were disappearing. Not only was the laundry disappearing the drawers that held the clean laundry were being emptied on to the beds and were being cleaned and reorganized!! Every thing was beginning to look like my pre-accident
perfect order clean and shinning!!

Late this afternoon, Debbie came looking for me and wanted to know what I had planned for our dinner and could she prepare and/or
cook it!! The plan is to fix our dinner the days she actually is here and to have the other days prepared as far as she could make them ahead!!

Debbie also finally said she could not help, but notice how bad my legs and especially heels have hardened. She said she had previously worked for a podiatrist and could she massage a softening cream in to them.
Have not had this done in years as I am too embarassed to go in to the salons any more. I am in dreamland!!

My house is again a perfect home!! I am anxiously awaiting Friday to get here as Debbie will be back!!


Okay, I only had my lovely "trance" until about noon. Miprezious was a bit less awake and looking for a place to nest after Max's taxi had picked him up at 5:00 a.m. However, she has her less perky days now and then. However, by noon, even Debbie was asking if she should call Mi's vet and/or Maggie and she had just met her. Miprezious has had a very "nasty" day and her evening has not gotten much better. My heart has skipped many beats over the course of this day and evening. Mi's doctor was not very optimistic when I first noticed some thing was wrong last Thanksgiving. We have only had the option of changing her food and simply watching her. She had a day or two like this just before Christmas, but she recovered nicely. I have been praying a whole lot as there is little else we can do!!

My mail came and I did have a few surprises!! I received a very cute cross stitch kit from a lady in my ILCS Group. It is a patriotic design that is to be finished in a really nice card frame. It will be a real welcome decoration that will look very nice all year. I truly thought I had received this by mistake. It is from Lily. I have had so little online time that I have missed so many of the nice gals who have recently joined my groups. I have yet to really be introduced to Lily, but she has to be a very nice gal to have sent me such a pleasant surprise. I am now also looking forward very much to getting to know Lily hopefully in the near future. I also received the "Advent Angel" chart I won in the 123.Stitch January drawing. She is a beautiful angel, but just not my favorite to stitch any time in the near future. I am overall attempting to complete my downsizing and this lovely angel will be shortly looking for a new home with some one who is interested in stitching her!! And, finally I received my very first H.A.E.D. chart - all 35 pages of it!! I chose the "Candlelight and Moonlight" chart. All the blues just called out to be in my new living room!! However, I predict this will be the rest of my life project!!

And, I did get my living room repainted by the "faux paint designer" I hired to paint it. She described the new paint to resemble simply just sitting in a cloud and we truly got just that. I have been waiting for all the new draperies to arrive as the sheers need to be hung first and they are back ordered till at least March 09. The new carpet is to be installed on February 24. I definitely will be getting pictures of this.

The bathroom is needing about a day's work yet to be completed. However, the majority of all the wall tiles have been waxed and are shinning very brightly. Debbie did clean and reorganize the entire linen closet today and has told me to leave the other cabinets for her next day here. And, this new flooring will also be installed on February 24.

I found out two people who are very loved by us are very ill while at church Sunday. I feel very helpless to do any thing for these two. Thus, I have found a very nice bookmark by Jeanette Crews Design that I hope go very well for me to stitch and complete soon for each of them.

I have just also started the Just Another Button Company 2010 Monthly Series of Teaspoons. Originally, I have been very diligent in getting the 2009 Tea Cups and the 2008 Tea Pots. I heard "teaspoons" and thought great as they did not sound too interesting to me. Surely I would not want to stitch teaspoons!! And, then I got a glimpse of them. They were instant "must haves"!!

I have several Little House Needleworks pieces started. I did not even know these existed till Kathy K. pointed me to them!! Now, it seems I have an entire notebook devoted to just Little House Needleworks charts!!

I also started a Brooke's Books perforated paper birth sampler for a baby girl. I have never been so frustrated with such a small little piece of cross stitching!! I have every angel and perforated paper kit that Brooke has designed. I can only hope all the different angel series goes much easier than this one!!

I have gathered up all my doll's houses and plan to devote many days of the week to each of their individual constructions!! I love to stitch houses. I got my new copy of Just Cross Stitch today and got a glimpse of a new "building" series they are also beginning!!

And, to see Karen's newest Newsletter earlier this evening with all I have at arm's reach. Karen owns Wasatch Mountain Stitching and her Newsletter is full of the new Nashville Market updates!! So many new things and no space to place them!! My beloved "Stitching Sanctuary" is literally closing in on me!! I have to downsize!!

I also opened my mouth and told the Sunday School teachers I would be glad to resume an old tradition I had years ago, again pre-accident. I agreed to purchase and fill two pinatas for a special treat for the children's Easter celebration!! In researching my online sites for these I found they now have bags, sold by the pound, with pre-mixed candy and small toys to fill the pinatas with. This should make it an easy project!!
Famous last words!!

And, now I go to start planning my start of "Candlelight and Moonlight".
All 35 pages of it. I have to ask some of the "pros" if I am totally crazed in thinking I want to stitch it on a 22-Count white Aida I have staring at me.

Hopefully, I will start to learn how to post pictures as I have so many to post and share!! And, I hope to get some additional online time to get my Blog in to an interesting format. I truly want to get to know so many of the new people in my groups also!!

Just DO NOT WAKE ME!! If I wake to Debbie again on Friday I will make these wheels learn to happy dance!! I am very much torn between is this too good to be true or have I finally went through enough Caretakers that I finally have found the right one!!

Love and Hugs!!
Deborah and Max
Miprezious, too!!

Monday, January 4, 2010

HAPPY NEW YEAR, January 04, 2010

Par to course, Better Late Than Never!!

Since my computer crash a few months ago, nothing has been the same on my computer, thus no pictures, few updates, and any thing else that could go wrong with my computer literacy!!

Out With The Old, And In With The New!!

I must have been a VERY good girl (most likely NOT), or a certain husband forgot his 30th Wedding Anniversary (give or take a few, depends on memory of who is counting-LOL!! Yes, I can laugh about it now!!)!!
Thus, I have got the best and biggest HP Computer which comes in a "Bundle" with speakers, 20" Flat Screen Monitor and whatever else it takes for the whole thing!!
And, Eunice has convinced me that I need and she will find some computer courses for me!! And, I agree whole heartedly!!

As for the heated debate over tile or carpet in our main bathroom, I do NOT agree!! Every one who knows the details well votes without any doubt that TILE is the only choice!! I was beginning to give a bit and had decided to actually go out and look at tile. However, during my end of December bout of bronchitis, walking pneumonia and a bit of flu instantly changed my mind as I shivered each time I needed the bathroom from the moment I entered it until at least ten minutes buried under a pile of blankets on our "wonder" (still wondering how in the world, I let Max convince me to all him to buy this $6,003.37 Therm-O-Pedic Adjustable Bed) bed that instantly heats up just from your own body heat and the super-duper (FLOP-did I actually call it as it is) mattress!! I know my limits well and I have had enough of our new deep-freeze bathroom since loosing it's carpet. Some where there is humor in this "incident", however, I am yet able to find it, so believe me simply do NOT ask!! No one has the stomach for this Max Moment!!


To start, I am able to say, "NO change in conditions"!! My Max and my Miprezious appear to be doing fairly well!!
For months, I have seen nothing, but continued deterioration in my Max. I long ago decided there was little else I could expect. I have conditioned my self to seeing ESRD on every thing concerning Max. For months, seeing ESRD, usually resulted in a world of tears accompanying every shower I took and many times I have had several showers in the same day. I have come to terms with End Stage Renal Disease!! It will no longer rule our lives!!

Max is by no means going to heal and get better. However, I am not going to have to intro my self each time I call the gods who run the Transplant Unit!! They are going to learn to know me by the very tone of my voice. I am going to begin my letter writting campaigns to every one including OPRAH again!! And, you can bet the farm, I am going to begin calling the "gods" and continue to ask "what number are we this week" and if things begin to look steadily not so good, as I have become all too familiar with the past few months, my calls will escalate to "what number are we today"!! We will never give up the one thing that the "gods" can not take from us and that is HOPE!! I am no longer terrified for my self when it comes to my own survival staying totally alone in a strange motel, in a strange city 90 miles from our home!! The last few months have been literal survival training and I have thus far overcome all the obstacles we keep having pop up and attempt to knock us over again!!

No, things are still not "heaven on earth" in our home, but they are also no longer a "living Hell on earth" on the flip side!! I had to tell Max he could no longer just quietly leave at 5:30 A.M. each Tuesday, Thursday and Saturday after getting me settled in my chair with every thing I could possibly need for the following four and one-half hours. I finally had to tell Max he was no longer allowed to drive him self to dialysis. Our regular quiet morning routine has turned into a frantic "if" the city taxi cab will show up at all, much less on time, to take Max in to his Dialysis Center!!
And, each dialysis day, Miprezious will begin to get anxious about 10:00 a.m. awaiting "Daddy" to be back home. She has just started insisting that I sit on the sofa with her, in front of the big picture window, so she can hang over the back of the sofa awaiting the first sound of the Municipal Transit special disability bus straining up our hill returning her "Daddy"!!

Max still needs most of my attentions!! However, I think he has begun to learn to at least "ask" before "acting" before he does much of any thing. I believe he has grown to realize and know he is confused and does not see things correctly and to depend on me to be there to sort every thing out for him, regardless if it takes three to four times over and over!! It has truly lessened my load by leaps and bounds as I do not feel like I have to watch him every moment of every day any longer!! Max is in pain that never lets up for him, however, he rarely complains about it at all. He is very fragile and is very prone to falls. There is very little I can do when he does fall, except to pick up the phone and see which neighbor is available. The neighbors are all still the very best and who can be nothing short of our guardian angels!! I would guess that they all would have their Caller ID units programmed to flash P.I.T.A. each time we telephone them, but yet they still "claim we are no bother" to all of them!!

It appears, probably more "wishful thinking" that Max has hit a plateau presently. He seems to be the same, although he is getting weaker each day. Max still feels, and God love him does better than he can do for him self, he HAS to take care of me!! He still has his rituals of getting me up and helping me get back into bed every night. I am beginning to be able to spend more time back in my "Stitching Sanctuary"!! Max comes to the doorway each night and will always say, "let me know when you are ready to go to bed". However, before I can get my self out in to the living room, he will be laid back in his recliner sleeping away as he does about all day and evening. He continues to get up in the night and wander, but I have learned to just let him get up as he will surely end up in the recliner fast asleep within minutes of his getting out of bed. I rely on Miprezious to bark if he dares to move a bit!!

We rarely go out whatsoever any more!! Our groceries are ordered on the computer and delivered the following morning, our laundry is dropped off and picked up at a full-service laundromat by a caregiver, my hair upkeep is done by one of the gals from my shop coming in to our home, our bills are all paid online and most all our purchases for any sort of needs are bought via the computer also. We pretty much only go out for medical related appointments!! Our big outing is usually church when we both are able to go. And, all is relatively going well with out the benefit of any relatives!!

Miprezious seems to be doing well. There are few, if any, laboratory tests that can be done for Mi. There is a blood test that is well over $200 that does tell us what her status is. However, after a REALLY bad initial first day for both of us, I got us together and we hired a canine nutritionalist. "Maggie" now prepares all of Mi's main meals. She also makes all her treats homemade. They mainly consist of dried apples, dried blueberries and homemade blueberry cookies!!
We thought there was not a chance in this world that Mi was going to even look at this new food, much less try it and surely would not eat it!! However, par to course, she fooled us once again!! Miprezious LOVES her new diet and the foods it allows. And, she loves her "Maggie" treats and "Maggie" dinners!! In fact, the first few days, we would place her food in her plate and she actually gobbled it down and then demanded seconds!! We will gladly pay for all the blood work the Vet wishes to pursue, but at this point, it truly matters little. And, can we really handle knowing each day that she is actually failing despite the fact we are doing absolutely every thing we possibly can do for her!!
Mi appears to be in no pain, whatsoever, and, more importantly she is an extremely happy little "furbaby" who becomes more dear to us both each day!! Mi had a wonderful Christmas and had more wrapped gifts around the wonderful "plum" Christmas tree than the very most spoiled child on this earth. Actually, she got so in to opening her gifts and trying to play with each as she progressed that we had to give her a "time out" in the midst of her festivities!!
I finally had to make her go in to the bathroom with her "Daddy" to simply make her catch her breath again and slow her heart beat down considerably. It did not take her very long to come charging back in to the living room with full steam ahead!! This time Max, and/or my self, helped her with each gift so she would not be quite so wild!! She sort of had us both worried Christmas Day as she was completely listless and did nothing, but sleep. Mi was simply trying to recoup her energies from Christmas Eve. Mi has become more of a lap little one in past month which was some thing she rarely would do. There is no complaining from me when she wants to be held as it is quite nice after a "trying" day!!

AND, NOW PRETEND TO HEAR A BIG DRUM ROLL................................
For my self!! I was one sick dog for several days!! On Sunday, December 20, I got quite ill in church. I got chills that would not stop!! Chills is just some thing that does not occur to me with my illness. The nerve system that controls my body temperatures is destroyed and does not work any longer. I have to be quite careful regarding getting too hot and too cold. In the eight years of my illness, I can remember no seiges of being too cold, much less ever having chills!! The following day was our 30th wedding anniversary!! We surely had no big plans, in fact, I was scheduled to have my knees and shoulder joints injected so they would have another attempt to work a bit better. I was too ill, but almost welcomed seeing my doctor. I was then diagnosed with the bronchitis, walking pneumonia and touch of flu!!
I was placed on two powerful antibiotics in hopes of being able to get well as I was needed far more here at home than being able to take the time to be hospitalized!! I progressed well in spite of the antibiotics making me even much worse sick than I was. After just a few days, I decided enough of them!! I was very sick prior to them, but I was REALLY sick with them!! I spent more time in the bed, although I could not have luxury of actually sleeping, for very little of the time, for fear of what woulld happen without my ever on duty watching eye!!

Christmas arrived. I was quite bummed that we were not able to attend candlelight midnight Mass or even Christmas morning Mass as the weather was quite snowy combined with a lot of ice!! However, we had a very nice Christmas holiday, even though it was probably one of the most quiet I have ever experienced in my life!! We had spent the Thanksgiving holiday with our parish priest, however, she detached a retina in her eye Thanksgiving night and had to have surgery just before Christmas holiday. It was the beginning of the nice, even and quiet days we have been having in this household.

During the Christmas/New Year time, I noticed my feet had went ice cold!! No matter what I did, which was little, as I can not tolerate any type of stocking and/or shoe on either foot. I simply could not get this overwhelming ice cold effect to leave either foot.

This past Saturday evening was great!! I had spent almost the entire evening in my stitching nest stitching and truly seemed to not have a care in this world!! The weather had turned even worse than it had been the previous several days. It was both snowy, with an ice covering and the temperatures were between minus ten to twenty below zero once again. Max and I had decided we would not even attempt going to Mass the next morning. We always have to consider that Max has to pretty much push my wheelchair up to the church entrance. We have been assigned a parking place as close to the entrance as there is, but it is still about a regular home's house and yard!! The church members have insisted we telephone when we leave our home about five blocks from the church. They are most willing to come out and assist me and let Max get him self inside, but he will not hear of this. I am pretty much trying to place a leg flat on the ground and give a push off with it to keep my wheelchair continuing to proceed ahead.
However, all things considered we just decided it was best to not even plan on going to church the next morning.
Thus, Max fell asleep in his chair as he does most evenings and actually stayed that way until about 2:00 a.m. I was more than content to just continue on with my stitching and I did with great pleasure!!

About 2:00 a.m., Mi decided that she wanted to be put to bed and she began barking very loudly in the hall that separated Max and I. Thus, we both were suddenly on alert and attention to her!! I decided to just stand up in front of my chair to get my bearings and to let Mi see that I was paying attention to her just to get her to stop barking!! I had a strange eerieness in both legs immediately. I actually looked, and looked again, as I felt I had spilled some thing or I had possibly wet my self!! We have a golden rule in our home and it is you go directly to "the Home" if you should wet your self that we regularly joke about between each other. I thought there was no way that this could have happened to me, but every thing was running rampant through my mind at this point in time!!

I continued to simply just stand there!! I finally sat my self back down in my stitching nest once again. I simply could not decide what was happening to my legs and feet!! Soon, I finally figured out absolutely nothing had happened, or was happening, to my legs and feet except the fact I was standing on carpet!! After almost eight years, I could feel the carpet under my feet!! Max came in to me and tried to steady me up a bit and I took actual STEPS!!
I actually took steps!! Max insisted I stop and not push my luck a bit further!! He insisted that we go to bed. I started to rub my feet and legs against the soft sheet under me and I could feel I was laying on an actual sheet!! Both of my feet felt like they were immersed and tied into bags of water!! It was an extremely strange feeling, BUT it WAS FEELING!! I have not had any feeling in my legs and feet during the past eight years, except excruciating pain. I did not have pain!! The rest of my body is still requiring the intense doses of morphine, however, my legs and feet continue to feel almost every thing and I want to just spring forward on them!! I know I have to take this "thing" very slow and very careful, but I am so elated over FEELING and real STEPS!! Everyone keeps warning me to be careful, take it slow, don't try to take too many steps, just try a few steps a day, etc., etc., etc.!! Eunice is still in utter disbelief. Max just continues to tell me not to keep my weight on my legs and feet all at once and says my legs and ankles are literally swelling up as he looks. This has already made my year!! There is no one or any thing that is going to stop me now!!

I have had my "balloon" broken many times previously!! I am all too well aware of this yet each day. But, I have so much hope, that nothing can happen that we can not handle and this is finally going to be OUR YEAR!!

Love and Hugs!!
Deborah and Max
Miprezious, too!!